Parents will largely agree that raising a child is an immensely rewarding experience. For the parents of children with HIE, these rewarding experiences are often punctuated by the confusion and concern unique to raising a child with special needs. Some parents receive a diagnosis directly after birth, while others discover differences later when their child begins missing developmental milestones. Parents do everything they can for their children, but it can be difficult to reach out for help when answers are few and far between. Oftentimes, a parent won’t know what kind of impact HIE will have on their child’s health until the child gets older. The “wait and see” approach is often the only one there is–and that can be very difficult.
Parenting is a tough job, and parents are encouraged to remember they need to take care of themselves too. Stress, depression and PTSD are risks that parents of children with special needs are advised to watch out for. There are resources out there for parents of special needs children, and several devoted specifically to parenting children with HIE. Support groups for parents are an excellent resource for information, support, community and a perspective that few other parents understand. There are also resources available for parents who would like respite care (assistance in caring for a child for a short duration of time), assistance in creating intervention or management plans, and other forms of help.
- Considerations in daily living
Caregiver Mental Health
Getting Help When You Need It
- When You Suspect Medical Malpractice
- Options for Getting Help
- Respite Care
- Finding and Paying for Childcare
- Home Care Services
- Out-of-Home Care
- Early Intervention and Special Education
- Finances for Special Needs Parenting: An Overview
- Cash and Income Assistance
- Defraying the Costs of Basic Needs: Food, Housing, and Medical Care
- Tax Planning for Special Needs Parents